Therapy and Dementia
Jen Carter, M.Ed.,
One of most common questions I am asked when I teach the
VitalStim Therapy course is about how to do swallowing therapy with patients
who have dementia or cognitive impairments. I think the answer is not what most
people expect. But first a little
background about the dilemma of swallowing therapy with patients who have
dementia and why this question is so frequently asked.
Swallowing therapy has advanced significantly in the last
decade, and dysphagia clinicians have many options for swallowing exercises and
compensatory techniques to help patients improve their swallowing function. However, with all the advancements in swallowing
therapy, it is difficult to improve the swallowing function with patients who
have cognitive deficits for several reasons.
Patients with dementia are often unable to complete
swallowing exercises which can have rather abstract directions, such as
“swallow hard”. Even if the patient can
follow guided directions, it can be difficult for a person with dementia to
remember why they are being asked to do seemingly strange exercises, such as
“stick your tongue out and swallow” and as a result they may understandably
refuse to do the exercises.
Unfortunately patients with dementia are often the very
patients that need swallowing therapy the most. Memory problems can make it impossible to
consistently remember to use compensatory strategies, such as a chin tuck, to
improve swallowing safety. Without
exercises or strategies, the only safe swallowing option for many patients with
dementia is a distasteful diet modification, like thickened liquids or pureed
food. But diet changes are often not a viable
solution since many confused patients won’t consume food and drinks that “just
don’t seem natural”. This can lead to
dehydration, malnutrition, and decreased quality of life for the patients and
frustration for the dysphagia clinician that wants to help the patients get
So, how do you improve swallowing function with a patient
that can’t do swallowing exercises, is unable to use compensatory strategies,
and refuses modified diets? I have
found that if a patient has a weak swallow and is cognitively intact enough to
eat or drink, then they may benefit from the addition of VitalStim (electrical
stimulation therapy) during oral intake.
The rationale is simple. The best
exercise for swallowing is swallowing which occurs repeatedly during eating/drinking. If electrical stimulation is applied during
oral intake, it can help to exercise the muscles during the natural activity of
swallowing. The patient is then
receiving swallowing therapy without having to do anything but eat or drink.
If you are familiar with electrical stimulation and the
buzzing/prickly sensation that accompanies it when it is first turned on, you
may be thinking: how is a patient with dementia going to tolerate the sensation
of this therapy? Below are some tips
for VitalStim with patients who have dementia:
Turn up the intensity of the electrical
stimulation as tolerated. This means
that you may at first get to an intensity level that is sensory only. After about 5 minutes the prickly sensation
will decrease, and you can then increase the intensity a little more. Keep going until you get signs of
therapeutic intensity as taught in the VitalStim course (audible swallow,
better swallow with electrical stimulation, etc.)
Don’t talk about the electrical stimulation during
the application as this will likely be confusing to the patient. While increasing the intensity, talk about
the food that the patient is going to eat or some other topic of interest. A
patient with cognitive deficits is not going to be able to tell you if they
“feel the grab” with the stimulation, and they will probably not understand if
you ask if the stimulation level is “OK”.
If the patient cannot verbally communicate, consider body language and
facial expressions and use the non-verbal signs of therapeutic intensity.
Follow other well-known strategies for working
with patients who have dementia such as eating in a natural dining setting,
such as the dining room, with real plates and silverware. This can help get
your patient cognitively into the task of eating. You may want to consider getting something
for yourself to eat during the session too, as it can be pretty unnatural for
many patients to eat if you’re not eating as well.
Remember, applying electrical stimulation with
no concurrent swallowing or pharyngeal muscle activity is unlikely to result in
any change in functioning. So you can’t
just apply the electrical stimulation and have the patient sit there as this
will not exercise the swallowing muscles.
Above all else, use your clinical
judgement. If a patient is not
cognitively intact enough to attend to a bolus placed in his or her mouth, then
this treatment is not for them. If a
patient is not safe for PO intake due to aspiration or aspiration risk, you may
want to limit oral intake to tiny ice chips during therapy. The use of VitalStim does NOT prevent
aspiration, so consider the results of the swallowing evaluation in deciding if
oral trials are right for your patient.
Of course, not all patients who have cognitive deficits
tolerate the application of electrical stimulation during a meal. Some patients will be too distracted by the
stimulation to participate in this therapy. But I have found more times than not, I have
been able to improve swallowing function with patients who would have been
otherwise unable to participate in swallowing therapy due to cognitive deficits
with the use of this therapy. The bottom line is just because someone has
dementia does not mean that they are not a candidate for swallowing therapy.
*Jennifer Carter M.Ed., CCC-SLP, BCS-S is a medically based speech pathologist with over 20 years of experience and is a board certified specialist in swallowing and swallowing disorders. She currently lives in Denver and has a private practice, the Carter Swallowing Center, where she evaluates and treats patients with dysphagia from around the Rocky Mountain region. She frequently presents at the local, state, and national level on the topic of dysphagia and is also a VitalStim Certification Course instructor for CIAO seminars.